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Portal of Medical Data Models (MDM)
Identification
Hosting Legal Entity
Self-standing RI
Legal Status
University or higher education institution
Location
Albert-Schweitzer-Campus 1 / A11, Institute of Medical Informatics University of Münster, Münster, PO: 48149, Nordrhein-Westfalen (Germany)
Structure
Type Of RI
Single-sited
Coordinating Country
Germany
Participating Countries
Switzerland
Netherlands
Spain
France
Austria
Italy
Portugal
Sweden
Belgium
United Kingdom
Norway
Status
Status
Current Status:
Operational since 2011
Scientific Description
The Portal of Medical Data Models (MDM) is a multilingual repository of medical data models for the scientific community. It contains data models from medical research (clinical studies) and routine patient care (electronic health records).
MDM is an officially registered research infrastructure funded by the German Research Foundation (DFG).
It was established in 2011 as an open access repository. To date there are >15.500 data models with >390.000 data elements available for download. Tumor medicine is a key topic in MDM and there are close links with the European Leukemia Network (ELN). MDM is the largest system of its kind worldwide. It is developed and maintained in close collaboration with the University Library of Münster.

RI Keywords
Clinical studies, Medical data model, Open-access infrastructure, CDISC ODM, Electronic health records (EHR), HL7 CDA
Classifications
RI Category
Databases
Data Archives, Data Repositories and Collections
Clinical Research Centres
Conceptual Models
Telemedicine laboratories and E-Health technologies
Research Data Service Facilities
Repositories
Scientific Domain
Information Science and Technology
Biological and Medical Sciences
Services
Metadata for Information Systems in biomedical research

The MDM portal provides metadata for information systems in clinical research and routine healthcare.

Equipment
Internet Portal for Medical Data Models

MDM content is available to the scientific community via https://medical-data-models.org.

Users
User Demographics
European Users - 29.0% in 2015
Extra-European Users - 29.0% in 2015
National Users - 42.0% in 2015
Collaborations
Networks
DFG LIS
Date of last update: 29/05/2018